Nearly 2 million French people, or about 10 % of women of childbearing ageare affected by endometriosis. Beyond pain and infertility, this disease imposes a significant financial burdenrarely taken into account.
Care not always reimbursed
Even in 2025, many acts linked to endometriosis escape national solidarity: imaging, consultations, hormonal treatments, physiotherapy, PMA … patients often combine costs outside the nomenclature, supplemented by sick leave.
Marina Kvaskoff, epidemiologist and Study coordinatorconfides in Release : “They have a lot of expenses and everything is not reimbursed“”.
Faced with this reality, an unprecedented study is underway to quantify this real cost, precisely and organized.
A large survey via three questionnaires
The study is based on the compared participatory platform-endometriosis. From June 5 and until the end of the summer, nearly 11,000 women are invited to respond to three components: unpaid care, the costs generated (travel costs, PMA, etc.) and economic losses related to work stoppages.
Marina Kvaskoff explains: “A new study… to better describe the financial costs borne by women affected“”.
The objective: finally provide tangible data to develop the care.
Put in perspective and conclusion
To date, there was only one estimate … blurry: about 150 € per monthaccording to a previous calculation carried out by Heroic Health, a mutual aid platform for the chronic patients, which we had relayed.
The current study, more rigorous, is based on individual and collaborative data. It will replace this figure in a real context, depending on the stage of the disease, the care path and the socio-economic situations of the patients. The challenge: to better adapt public policies and reimbursements, by enlightening this hidden cost.
If no curative treatment exists to date, several solutions make it possible to relieve patients: hormonal contraceptives to slow down the proliferation of the endometrium, anti-inflammatory and analgesic to alleviate pain, surgery to remove lesions, and psychological support to cope with chronicity.