Neurodegenerative diseases: what the national strategy for patients and caregivers predicts

Neurodegenerative diseases: what the national strategy for patients and caregivers predicts
France is launching its 2025-2030 national strategy for neurodegenerative diseases: an ambitious roadmap that promises prevention, support and research, but which already poses the sensitive question of piloting and funding to transform the lives of patients and caregivers.

The National Strategy MND 2025-2030 intervenes in the face of a massive health challenge: more than 1.6 million people are affected today and tens of millions of relatives are concerned. The plan offers 37 concrete measures for the next five years – its promises concern early diagnosis, home support, the transformation of establishments and a strengthening of research, but its success will depend on the clarity of piloting and mobilized means.

1.6 million people concerned and 2.5 million caregivers

France unveiled in early September 2025 a strategy that wants to respond to the increase in neurodegenerative diseases and support families. “”Neurodegenerative diseases affect more than 1.6 million of our fellow citizens and several tens of millions of relatives are impacted by these diseases which, although our elders are the most affected, may appear before 60 years“.

The government’s displayed objective combines prevention, support and research for the period 2025-2030. “”With the 2025-2030 strategy, I wanted France to take a new step. Built around six axes and thirty-seven measures, it sets three clear priorities “ says Yannick Neuder, Minister responsible for health and access to care.

This roadmap is presented as national, co -constructed with associations and designed to be followed and adapted to the innovations.

The 5 main axes of the national strategy

This national strategy revolves around 5 major axes:

  • Change the look at these diseases
    The strategy puts the fight against stigma and training at the heart of its first actions: consumer information campaigns, training of public officials and promotion of a more inclusive company. Objective: that the announcement of the diagnosis no longer locks the person in shame, and that society learns to better take care of the daily life of patients (eg campaigns, educational tools).
  • Act earlier, based on early prevention and diagnosis
    The document insists on life throughout life and early identification via existing devices. Epidemiological projections and the strengthening of cohorts and databases are planned to better target interventions and accelerate research.
  • Better accompany the sick and their loved ones, everywhere in France
    The text promises a strengthening of support for caregivers, personalized courses and territorial support systems. The strategy aims to double certain support capacities and to multiply respite solutions, based on associations that have been consulted. “”We welcome the launch of the new strategy that meets a strong demand from the families concerned, professionals from the medical and medico-social and the associative world of which we are part“declares France Alzheimer.
  • Transform the offer into establishments and at home
    The domiciliary turn is central: strengthening of specialized teams, development of home hospitalization and generalization of units adapted to EHPAD. The objective is to allow people to stay at home as long as possible in secure conditions, while improving the supply in institutions.
  • Support research and innovation to prepare the treatments of tomorrow
    The file places research at the heart of the plan: launch of a priority program (PEPR), consolidation of the Alzheimer National Bank and data sharing to accelerate tests and biomarkers. The authorities insist on international cooperation (Brainhealth) so as not to remain isolated from scientific issues.

Improve home care: transform promises into realities

The plan details operational measures: doubling of specialized teams, creation and extension of territorial resources, development of day care and strengthening of home hospitalization (HAD). These measures aim to absorb the “demographic shock” and to provide proximity management.

In the field, associations salute the effort but require clarification on the means. Thus, France Parkinson declares that “The strategy should nevertheless specify its funding, define quantified objectives and consolidate certain levers “. This recurring request shows that the measures can be ambitious on paper, but that their translation into effective services will depend on the calendar and the really mobilized funds.

Associations: between cautious optimism and requirements

Patient organizations have favorably welcomed the announcement while calling for operational vigilance. As France specifies in plates specifies, “Given the political context and budgetary uncertainties, France sclerosis in plates undertakes to ensure the correct application of all these measures “.

In other words, the message of associations is twofold: recognition of the scope of the plan and requirement of concretizations – indicators, calendar, financing – so that hope is translated into palpable improvements in everyday life.

The file provides for governance architecture: “New governance will be implemented for the management of the MND 2025 – 2030 “strategywith a semi -annual strategic committee and a technical monitoring committee. This is a necessary administrative response, but associations require concrete details on indicators and financial means – requests which return as an essential requirement before effective implementation.